Dear Fellow BBSers
A very good friend of mine was diagnosed 5 years ago with Motor Neuron Disease (MND). He is in his mid-40s and has always been a very active and fit person. Needless to say the diagnosis hit him and his family hard - he has a wife and two teenage daughters. However, he has fought the illness every step of the way and whilst his mobility is diminishing he is determined to leave a mark on the world.
He is doing this in various ways but the latest and definitely most challenging is the launch of a high court challenge to the outdated right to die laws. He is a lover of life and continues to strive to stay as well as possible despite the relentless illness. He is determined, however, to campaign to legalise assisted dying for people like him, so everyone has the freedom to make a choice towards the end of their life.
Over the last week, the case has generated significant media coverage on radio, TV and in the newspapers. He was able to raise £20k in a matter of a few days via Crowd Justice to indemnify him and his family against any costs arising from the initial request for a review of the evidence.
I have been keeping in close contact with him and it is a gruelling process but I met him today and his spirits are high and today was a landmark day for him as the the court papers were lodged as the first part in this process.
I'm not posting this to raise money for his cause (although any contributions would be welcome to him) but more to raise awareness of the cause as I also believe strongly in the principle of what he is trying to achieve. Apologies in advance to anyone who doesn't share this view as I know it is a highly personal and emotive issue.
Anyway, more information for those interested can be found here To view the link you have to Register or Login
A very good friend of mine was diagnosed 5 years ago with Motor Neuron Disease (MND). He is in his mid-40s and has always been a very active and fit person. Needless to say the diagnosis hit him and his family hard - he has a wife and two teenage daughters. However, he has fought the illness every step of the way and whilst his mobility is diminishing he is determined to leave a mark on the world.
He is doing this in various ways but the latest and definitely most challenging is the launch of a high court challenge to the outdated right to die laws. He is a lover of life and continues to strive to stay as well as possible despite the relentless illness. He is determined, however, to campaign to legalise assisted dying for people like him, so everyone has the freedom to make a choice towards the end of their life.
Over the last week, the case has generated significant media coverage on radio, TV and in the newspapers. He was able to raise £20k in a matter of a few days via Crowd Justice to indemnify him and his family against any costs arising from the initial request for a review of the evidence.
I have been keeping in close contact with him and it is a gruelling process but I met him today and his spirits are high and today was a landmark day for him as the the court papers were lodged as the first part in this process.
I'm not posting this to raise money for his cause (although any contributions would be welcome to him) but more to raise awareness of the cause as I also believe strongly in the principle of what he is trying to achieve. Apologies in advance to anyone who doesn't share this view as I know it is a highly personal and emotive issue.
Anyway, more information for those interested can be found here To view the link you have to Register or Login
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