Apologies for the self indulgent thread, but thought some may be able to help by sharing the link to this short awareness video I made to highlight a condition called 'Fragile X syndrome', that my daughter suffers from. She features in the video.
It's world Fragile X awareness day on Friday 22nd July, To view the link you have to Register or Login where many buildings and landmarks all around the world will be lit in the colour teal to raise awareness.
Awareness of Fragile X is so important as it will bring more resources towards further research, which means we get closer to effective treatment and even a cure for sufferers like my little girl. It really isn't the stuff of science fiction or wishful thinking; scientists believe it is now very much within reach.
Treatment discovered is also likely to impact other neurodevelopmental disorders like Autism and Alzheimer's disease. Fragile X is actually considered to be the best key we have to solving Autism.
So if people are able to share the following video link on their social media platforms to help spread the cause, it will be so very much appreciated.
Also open to any ideas about how I could spread the video message further.
Thank you for reading :)
To view the link you have to Register or Login
It's world Fragile X awareness day on Friday 22nd July, To view the link you have to Register or Login where many buildings and landmarks all around the world will be lit in the colour teal to raise awareness.
Awareness of Fragile X is so important as it will bring more resources towards further research, which means we get closer to effective treatment and even a cure for sufferers like my little girl. It really isn't the stuff of science fiction or wishful thinking; scientists believe it is now very much within reach.
Treatment discovered is also likely to impact other neurodevelopmental disorders like Autism and Alzheimer's disease. Fragile X is actually considered to be the best key we have to solving Autism.
So if people are able to share the following video link on their social media platforms to help spread the cause, it will be so very much appreciated.
Also open to any ideas about how I could spread the video message further.
Thank you for reading :)
To view the link you have to Register or Login
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